Communicate personally-important research findings

You should make an easy-to-read summary of your research outcomes available to subjects who wish to learn about them. ⁽²⁾

You should also ascertain whether subjects would like to be informed about any individual findings that may have direct implications on them or their families, including new information that could be discovered if their data or biological samples are used for future research. You should seek permission to retain subjects’ contact details for such purposes.

If subjects refuse to be contacted in the future, you should respect their decisions unless there are compelling reasons to re-contact them. For example, if you identified a very serious health problem which the subject may not have expected or considered before, and there are effective treatment options available for it.

Disseminate the knowledge that you gained →